Wednesday, August 8, 2012

Have you ever danced the Limbo?

We are waiting in Limbo for now. Just thought I'd update everyone that this week Karen has had a consultation to begin radiation treatment on the largest tumor on one of her vertebrae (the rock in her back that causes the most pain and makes her not sleep well). She had a face mask/mould made for her she can wear during treatment. The steroid medicine makes her face swell up. She hopes to come off of that as soon as the tumor shrinks (this is our hope what will happen during radiation). As of today, pathology still does not know where the primary cancer cells are from. A panel of oncology doctors meet together to discuss what plans of action to take and may have her do a PET scan sometime. She also may have a biopsy done from somewhere else. So, dance the Limbo with us....and maybe you'll learn to fly with us, 'cause it's leaving us up in the air.

Our prayers are still that the doctors will be guided to find the primary cancer, whether it be through tests, scans, biopsies etc. All she cares about right now is to come off the pain meds. Managing the pain first, then the overall cancer will help in many ways. I've realized for me, this blog shares two purposes: a way to keep people updated on Karen's current condition and needs, and a way for me to express love and concern and giving encouragement to her. I do this much better in writing than in person. So, in feeling a little (a lot) helpless and at a loss of what to do for our Mom, I hope she has peace and comfort knowing there are many cheering her on, praying for her, thinking of her and showing she's not alone on this path of difficulty. No one knows what she is going through for her but herself, but she is not alone to carry the full burden. I know each cancer patient is different. My Mom said she wrote in her journal, "I'm having a hard time being a patient patient". :) Let's just say we're learning a lot about red tape.

Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops......at all.  ~Emily Dickinson

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